Sunday, 30 October 2011

The Princess Royal Trust for Carers

Do visit the Princess Royal Trust for Carers
http://www.carers.org/


The Princess Royal Trust for Carers was created on the initiative of Her Royal Highness The Princess Royal in 1991. At that time people caring at home for family members or friends with disabilities and chronic illnesses were scarcely recognised as requiring support.
For nearly 20 years, The Princess Royal Trust for Carers has been fighting to provide carers with the support they so desperately need. The Trust understands that few of us plan to become carers, so when a caring role starts, every carer needs an expert to guide them through the maze of services, rules and entitlements. For a carer, this can make the difference between keeping and losing their job, or between staying healthy and collapsing under the stress.
At the heart of The Trust is a unique network of 144 independently-managed Carers' Centres, 89 young carers' services and interactive websites (www.carers.org and www.youngcarers.net) which deliver around the clock support to over 424,000 carers and approximately 28,500 young carers.
Our vision
Carers are recognised, valued and able to maximise their quality of life.
Our mission
To meet the diverse needs of carers through excellent local and national services.
Our strategic aims
  1. To ensure that carers are able to influence decisions which affect their lives.
  2. To work effectively with Carers' Centres and other partners to develop, promote and deliver high quality services for carers.
  3. To raise awareness of carers and the contribution they make to society.
  4. To secure the sustainability of The Trust and to effectively manage its resources.
In addition, The Trust also acts independently in the interests of carers through:
  • Research, development and consultation.
  • Influence on national, regional and local policy.
  • Partnerships with other national organisations.
  • Information through our interactive websites, providing advice and access to support groups.
Note the Getting Help page with useful links for carers
http://www.carers.org/help-directory/old-age

Monday, 24 October 2011

Elderly Care in the NHS has become a national shame


Elderly care in the NHS has become a national shame


Every now and then, a story comes along that is so stunning in it’s simplicity, yet so revealing of the machinations of our health service, that it takes a while before the full implications of the story becomes clear.
Consider, if you will, the tale of 82-year-old Shelia Smith admitted to Bradford Royal Infirmary hospital with suspected heart problems after collapsing unconscious at her nearby home.
In hospital, Mrs. Smith suffered four falls - very common for elderly patients - and became incontinent. On one occasion she was found ‘flat on her face’ on the floor, having been there for some time, and she was badly bruised.


Desperation: Sheila Smith with her daughter Annette Townend who acted when doctors warned her her mother would be dead within days 'if something wasn't done'

There were further issues to contend with.
During a conversation with family members and a hospital doctor, it became apparent that the great-grandmother was suffering liver and kidney problems due to lack of food and fluid.
The doctor also, they claimed, warned that Mrs. Smith would be dead within days ‘if something wasn’t done’.
For her daughter, Annette Townend - who has the double-blow of suffering from terminal bowel cancer - this left no alternative but to take matters into her own hands.
So, at a personal cost of £1,000 she employed undercover carers - who pretended to be family and friends - to sit with her mother and ensure that she was eating, drinking and going to toilet on a regular basis.
That Mrs. Smith went on to not only survive her hospital experience but made a recovery to decent health, is surely no coincidence, is it? Of course it’s not!


Bradford Royal Infirmary: Annette Townend said her mother was left in soiled bedding for hours

Earlier this month a damning report by the Care Quality Commission found that one in five hospitals was breaking the law because the nursing care of the elderly was so appalling.
Elderly patients, the report claimed, are frequently neglected by NHS staff. They are left in pain, dehydrated and malnourished.
Is this a misguided and savage attack at our most treasured of institutions? A political assassination of a great public body?
Sadly, I can testify that there is a great deal of truth to the report and, by extension, the woeful tale of Sheila Smith.
Last year I had been pre-booked, at a Gloucestershire hospital, for extensive foot corrective surgery. Following the operation I awoke to find myself on the stroke and trauma ward.
My temperature had rocketed and my blood pressure had plummeted and, as I came around from the anaesthetic, I took stock of my surroundings through my pain and blurred vision.
It was a six-bed, single sex ward and, at 46, I was the youngest patient by decades. The closest in age was a 72-year-old who had fallen at home and suffered a stroke.
On my first night a jovial nurse in her 50s explained how to summon help as she pointed out the call bell at the side of my bed.
'I promise only to press in emergencies,' I reassured her. 'Don’t you worry,' she replied. 'You’ll have our attention anyway. Your youth means we’ll be like bees round a honey pot.'
She winked and I assumed she was kidding to distract me from the raging pain that had taken hold as the painkillers wore off.
Over the next three days I came to realise the truth of her statement. And, it has to be said, I was shocked by what I discovered.


Abandoned: The issue is not a question of resources but one of a lack of leadership and poor attitudes

First, to be clear, this particular nurse - as indeed several of her wonderful colleagues - are an absolute asset to the NHS.
She was attentive and sensitive to all her patients - regardless of age - and they clearly adored her. She was firm but fair and she made sure that all of us received the same level of care.
Unfortunately, there were at least three of her nursing colleagues who left a great deal to be desired. It brings me no pleasure to recall them.
During my time on the ward, I witnessed several of the day nurses behave in disturbing ways towards their patients. They delighted in ignoring, then taunting, some of the more needy women on the ward.
Myrtle, the eighty-something in the bed next to me had late-onset dementia.
Fair to say, she was a difficult neighbour. She routinely screamed, pressed the call bell repeatedly, claimed she was being kept there against her will and had angry and violent outbursts.
None of this was her fault. However, this didn’t stop the nurses in question treating her as if she was a pariah. They shot amused winks at each other, walking past her bed as she cried for attention.


Once she was left for over half an hour when she had messed herself and as the nurse cleaned her up, I heard from behind drawn curtains, Myrtle say, 'Ouch, you‘re hurting me.'
The nurse snapped back: 'Stop making a fuss, I’m trying to help you.' There was no apology.
On two mornings, I watched as the same nurses delayed in giving her a bed bath, even though they had assisted the other women who were in less urgent need.
Neither was the treatment of Myrtle in isolation.
In the corner of the ward was 80-year-old Anna. She and her husband had been involved in separate falling accidents and he had been taken to another hospital 20 miles away. Anna, scared and bewildered, was desperate for news.
During my time there, I heard her repeatedly plead with several of the nurses to let her ring the other hospital.
One nurse, in particular, kept promising Anna that this would happen and then she swiftly reneged.
She told Anna: 'It’s not convenient' and 'just concentrate on getting yourself better'.


Personal care: Elderly care in the NHS is scandalous and has been systematically failed by successive governments (file picture)

Never mind that being left to fret about her husband’s condition added to Anna’s anxiety and delayed her healing.
The day nurse appeared to revel in the power she held. It was disconcerting to witness but in my bleary and drug-induced state I felt helpless to intervene.
It was on my second night that I realised my 'youth' gave me priority.
Concerned at my poor recovery, the ward staff decided to move a fractious Myrtle from her bay so that I could rest.
She was wheeled into the corridor where she stayed for the night. From my bed I could hear her asking over and over again, 'Why am I here? Where is everyone?'
No one answered her. It was as if she was invisible.
How profoundly sad to be on the receiving end of that. To know that your age confers you with a type of non-existence. As if you no longer count.
For Myrtle, as for everyone else observing, it was clear that my needs were considered greater than hers.
Neither is the experience of shunting elderly patients into corridors an unusual occurrence as numerous undercover investigations, reviews and the words of caring hospital staff have testified.
The reality is, hospitals are ill-equipped to deal with the elderly who require very specialist care, including help with feeding and drinking.
These issues, for example, resulted in Sheila Smith, developing further health complications because her food and drink was delivered to her but she needed assistance with her feeding and drinking. This was not available.
So is this just a result of staff being over-worked? Not entirely.


Forgotten excellence: NHS hospitals were once the cause of great pride for our nation

Some NHS nurses, and it pains me to admit it, have become so acclimatised to the environment of neglect that it has become, to a worrying degree, the uncaring profession.
Elder care in the NHS is scandalous and has been systematically failed by successive governments. Might it be that so many ministers are able to afford private care that they are not truly in tune with what the rest of us have to endure?
That the coalition have failed, so far, to rectify what is patently clear to the vast majority of citizens is disheartening at least, and down-right alarming at best.
We need to be realistic about appropriate care for the elderly. For the truth is, elderly people fighting illness already have the odds stacked against them. They require specialist care to compensate for their vulnerability, but they are not receiving it.
The additional stress and neglect they experience in hospital reduces their chances of recovery. How can we keep allowing this to happen? It beggars belief.
And that is quite aside from the fact that we allow them to be treated with such indignity.
NHS hospitals were once the cause of great pride for our nation. Rightfully, so. 
Today, and specifically with elderly care, they are akin to a lottery. Where the survival rates for elderly patients are a game of chance. And that, whether it directly affects us or not, is something that should shame us all.

Saturday, 15 October 2011

Elderly Care: Your stories

Elderly patient rests her hand on her walking stick in a waiting room

Too many hospitals in England are falling short in the most basic care they are giving elderly patients, inspectors say.



The Care Quality Commission carried out unannounced visits at 100 hospitals to assess dignity and nutrition standards. It identified concerns in 55 cases, describing the findings as "alarming".
Here BBC News website readers share their stories.

Daryl, in London

When I visited my grandmother, I was absolutely disgusted with the lack of care she got before she died. She couldn't open her mouth to speak and her eyes looked so sad.
I noticed that her lips were stuck closed and demanded a mouth swab to apply water from one the nurses. The nurse was so rude and shoved me a trolley with a bowl of water and swabs. Her mouth was full of gunge. It was obvious that she had not eaten or drunk any fluids for god knows how long.



She was a wonderful great grandmother who help and cheered up so many people. I dread being treated like this when my last few days are up in a hospital.

I'm still very angry at how the hospital left her like this on her last few days. The ward was so noisy with other elderly patients screaming for help.

Adam, in Hertfordshire

These worrying findings back up my recent experience with the death last week of my 93-year-old father. He died after five weeks in hospital. I think the inspectors probably underestimate the size of the problem.

The catalogue of failings in basic care is too long to list. All of this happened in a well performing trust, which had signs up all over the place saying how well it was performing.
Apart from the failings of individuals involved in my father's care, there is a terrifying organisational disconnect whereby trusts can appear to be performing well according to national targets yet the reality of delivery of day-to-day care is appalling.
I think it is possible for hospitals to reach every government target and yet still be failing. Hospitals are dangerous places for the elderly.
I am a hospital consultant and was unable to protect my father from this dysfunctional system.

Claire, in Cambridgeshire

Until recently I worked as a health care assistant on a busy hospital ward where staff levels were usually one nurse and one health care assistant to around 15 patients.

During the daily running of the ward, this worked adequately as our patients were pre-booked for investigative procedures, allowing us to prepare for their needs before they arrived.
Problems arose during the winter when the beds were 'double booked' and given to A&E patients at weekends who could not be placed elsewhere.
This meant that planned admissions who came in on Monday and during the week were forced to wait for another slot and we were left to deal with all manner of specialist conditions we had little experience with.
We were given no extra support staff and suddenly one nurse and one health care assistant had to provide care for - sometimes - 15 people needing help with personal hygiene, eating, walking and often, dementia.
Staffing levels were, in a word, unsafe, and though we did the best that we possibly could in the circumstances, feeding everyone who needed help as soon as their meal arrived was simply impossible.
Whilst I will defend over-stretched nurses to the hilt regarding feeding - simply because of logistics - there is no excuse for a lapse in patient dignity.
Pulling curtains properly takes only a quick glance over the shoulder as you enter a bed space.

Lee, in Nottinghamshire

As a nurse of 12 years experience working within a range of health care settings, mainly primary care, I'm mortified to say that I do not find the report in anyway surprising.
The care received by many patients in the NHS or other care settings in this country currently is nothing short of scandalous. Wide ranging and urgent action is necessary to protect the vulnerable people of the UK.

From speaking to close colleagues and other nursing friends I think this is an endemic problem across the whole of the country.
I'd hate people to think it's just about indifferent and uncaring nurses, although in some instances that has become the case.
Unfortunately nurses are now working in a relentless environment where it is impossible for them to deal with their workloads. Most people who go into hospitals are less than impressed by some of the most basic elements of care.
I'm ashamed of the report and I find it impossible to believe that any nurse wouldn't care, but most would be like me and find it a bit difficult to do anything about it.

John, in Essex

I'm a nurse who has recently left the NHS. I left because I was no longer able to go to work to just look after people - the managers at the top had other ideas about what they thought I should be doing.

I think the vast majority of wards need to be better staffed, have better training and a better focus on care. There is too much form filling and not enough focus on care.
Essentially, there are three things the NHS can do to solve the vast majority of these things happening. More staff on the wards, better training, and a reduction in pointless box ticking paperwork.
In my experience, managers regularly deny that under-staffing makes any impact on care. Training is usually the first thing to be cut when the books need to be balanced.
There is a culture of obsession when it comes to measuring the inane: such as are the notes written in black ink; are the forms filled in correctly; is uniform policy being complied with?
Does any of that really matter when you've got ill people to look after?
The report isn't a surprise to me. The danger is pointing the finger, as it's as much a fault of the system as the individual.

Why doesn't the NHS care about the elderly?


by ANNA SMITH

13th October 2011




There are few deeper agonies in life than watching an elderly parent fading away before your eyes.

Someone who was once indestructible, a real tour de force, who could make things happen when everyone’s backs were to the wall.

When you see them weak and totally dependent on you, it brings out in you a compassion and a depth of feeling you may not have believed you were capable of.
So when faced with this, we do not question what our role should be or how we are going to handle it. 

We simply pick up from where they left off, and we look after them, the way they built their entire lives around caring for us.

But in doing this, we have come to live in dread of the  moment we have to part with them into the care of the NHS, because when that happens the care we have given them is out of our hands.

We are powerless. And the real tragedy is we are literally waiting for them to die.
It’s not hysterical to say that, and it’s not an exaggeration. It is what is going on every day in NHS hospitals up and down the country.

An elderly person goes into hospital with a broken leg, or a minor infection, and so many of them never come back out.

You are forced to watch, frustrated, as the care they are entitled to, the care they deserve to be given, just isn’t there any more.

At last, a damning report on the elderly care in hospitals, has said something the rest of us have known for a very long time.

This isn’t just shameful neglect. It’s criminal neglect.

Some nurses ignored doctors orders to set up drips for dehydrated patients

At a time when we are spending more money than ever on the NHS, the elderly are being left to die. Old people are being denied the basic human needs to survive – eating, drinking and going to the toilet. If there is one thing that will unite the country, it’s if someone steps in and picks up this issue by the scruff of the neck and deals with it.

Not because one day we’ll all be old and it could be us lying in a hospital bed. But because we have failed as a society if we are prepared to write off our elderly population so cheaply.
The horrific report by the Care Quality Commission found at least 20 hospitals where there was a disturbing catalogue of appalling conditions.

On some wards, inspectors saw frail patients rattling their bedrails or banging on water jugs to try to attract the attention of staff.

On others, nurses had ignored doctors’ instructions to put dehydrated patients on drips, abandoning them without fluids.
Elderly patients were faced with the indignity of using a commode next to their bed, because nobody was available to take them to the toilet.

Over four months, the care watchdog visited 100 hospitals to check they were meeting basic care standards – partly triggered by a campaign by the Daily Mail and the Patients Association following shocking revelations about hospital wards.
They found that one in five hospitals were actually breaking the law, that in 20 hospitals, nursing care was so poor that it breached the Health and Social Care Act 2008.

Have we really reached such a sorry state in the NHS that we now have to start prosecuting hospitals for lack of care? 
If we have, then perhaps once we start criminalising their failure in caring for the elderly, someone may actually take it seriously.

The truth is, prisoners - rapists, murderers and drug dealers - who routinely scream about their human rights being breached, are treated with more respect than the elderly in hospital.
It’s a disgrace and it shames us in the eyes of the world.

The elderly who are being neglected and denied the help they need, are people with a spirit and mentality so far removed from the trivia that occupies most of modern society. 

Many elderly are being denied the care and respectful treatment they deserve. It¿s a disgrace and it shames us in the eyes of the world.


They were from an era of thrift, where they would work until they dropped, and state handouts were something to feel ashamed about, rather than today when it’s a way of life.

They came from a time where there was no gadgetry, no distractions, where everything was about family life, and you kept it together through all the hard times. They deserve everything we can give them in their hour of need. Anything less than that is a shameful indictment of what we have become as a society.
Many of us have painful and bitter memories of our elderly parents’ final days being spent in the stifling atmosphere of an NHS hospital.

I was there day and night with my mother until she died last year from an infection that the nurses failed to detect, either because they were too busy with paperwork or rushed off their feet.
During my time in the ward, I saw patients buzzing for nurses who never arrived, old ladies having to use a commode at their bedside, others going hungry.

I saw one old lady lying for hours with the remains of her breakfast cereal spilled on her sheets as she slept. Nobody came to clean her and make her comfortable.

For relatives, like me, raging on the sidelines, it feels as though somewhere, there’s been a collective decision made that these old people are going to die anyway, so they are not a priority.

What the Care Quality Commission has found in a cross section of hospitals is not isolated. It is going on in almost every hospital up and down the country.

And every time there is a shocking report, the Health Secretary will trot out the same soundbite that things are going to change.

But if you were to walk into any geriatric ward in a month’s time, you’ll find nothing has changed.
And that is nothing short of criminal.